Raynaud’s Syndrome – Resources

Did you know that Raynaud’s Syndrome (or Raynaud’s Disease) is experienced by between 5 and 10% of the population – but for approximately 80% of sufferers, it goes completely undiagnosed and is something they manage without knowing what they are experiencing.

The following video from the Raynaud’s Association explains the condition

With the onset of fall and winter, the symptoms can often get worse and sufferers can benefit significantly from exercising some of the great tips and idea from forums and supports groups on the internet.

Finding the support networks and people to follow can be difficult. In this roundup post, we’ve gathered resources from around the world into a single page. If you know someone who would benefit, please share the link with them. If you have any resources we are missing, send us an email and we would be pleased to add it to the list.

Raynaud’s Support Websites

Raynauds’ Association


Raynaud’s Association Forums


Scleroderma and Raynaud’s UK


Mayo Clinic


Raynaud’s Facebook Pages and Groups

Raynauds’ Association

Raynaud’s Association Page

Raynaud’s Disease

Raynaud’s Disease Group

Raynauds awareness

Raynauds awareness Group

Scleroderma & Raynaud’s UK – SRUK

Scleroderma & Raynaud’s UK – SRUK Page

Raynauds Scleroderma Awareness- Global Patients

Raynauds Scleroderma Awareness- Global Patients Page

Raynauds Unit Royal Free Hospital

Raynauds Unit Royal Free Hospital Page

Raynauds Disease / Phenomenon

Raynauds Disease / Phenomenon Group

Living with Raynaud’s

Living with Raynaud’s Page

Raynauds Phenomenon Sufferers: Invisible Illness

Raynauds Phenomenon Sufferers: Invisible Illness Page

SYC Raynaud’s awareness

SYC Raynaud’s awareness Page

Raynaud’s Disease or Syndrome

Raynaud’s Disease or Syndrome Group

Lizzy’s Raynauds & Scleroderma Craft n Chat

Lizzy’s Raynauds & Scleroderma Craft n Chat Group

Raynaud’s Twitter Accounts

Relevant Hashtags


Raynaud’s Assn.

The Raynaud’s Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud’s Phenomenon.


Scleroderma and Raynaud’s UK is the only charity dedicated to improving the lives of people affected by Scleroderma and Raynaud’s.

Raynaud’s Disease

We are here to help with guidance, advice & products to help you manage Raynaud’s Disease.

Raynaud’s Phenomenon

Blood vessel spasms brought upon by strong emotions and cold temperatures, resulting in loss of circulation to the extremities

Raynaud’s Rescue

Tips, treatments, and info about Raynaud’s disease and Raynaud’s phenomenon for people who get attacked by cold, white fingers and toes!

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